In 2010, The Arc conducted a national online survey, called the FINDS Survey, to obtain perceptions of individuals with intellectual and developmental disabilities and their families on a range of life-span issues. These issues included education, transition, employment, transportation, community living, housing, family joys and concerns, and many more relating to various aspects of living. With more than 5,000 responses, the results have provided families, providers, researchers, legislators, and other key stakeholders with an unprecedented depth of current information as reported by families connected to I/DD.

Families from all 50 states and DC completed surveys. People with disabilities responded from 38 states and DC. Nearly 5000 caregivers responded (4,962) as did 558 people with disabilities. The vast majority of caregiver respondents were family members (95%) who are living with their family member with disabilities (75%). Additional detail regarding respondents is available in the FINDS Technical Report. The results are representative of the people who heard about the survey and responded and may not be representative of all people with disabilities and their families. Data analysis was performed by Lynda Anderson, Sheryl A. Larson, Allise Wuorio and K. Charlie Lakin of the Research and Training Center on Community Living, Institute on Community Integration, University of Minnesota.

In a report on the top findings from the survey called Still in the Shadows with Their Future Uncertain, The Arc laid out a multi-pronged action plan calling on concerned individuals to join with The Arc to promote and protect the rights of people with intellectual and developmental disabilities, engage current lawmakers and candidates for office in the issues and make their voice heard in the halls of government, and encourage employers to hire people with I/DD and share with us their challenges and success stories.

To read the full report, please visit